PANS/PANDAS AWARENESS DAY

PANS/PANDAS Awareness Day on October 9 sets out to increase research, education and support to those affected by Pediatric Acute-onset Neuropsychiatric Syndromes (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS).

#PANSPANDASAwarenessDay

In the United States, nearly 1 in 200 children are diagnosed with PANS and PANDAS. Symptoms of PANS and PANDAS come on suddenly following a strep, bacterial or viral infection. The symptoms include:

tics
sudden onset Obsessive-Compulsive Disorder
deterioration in skills
begins refusing foods and become selective in foods they will eat
anxiety
depression
reduced performance at school
sensitive to touch and sound
sleep changes
hyperactivity
uncontrolled movements
Rheumatic pain

PANDAS is often misdiagnosed. The symptoms can diminish or remit. However, relapse occurs increasing in duration and intensity over time. Some causes of relapse include repeated infections and environmental triggers. Early diagnosis can result in long-term remission. Treatments include antibiotics, intravenous immunoglobulin (IVIg), and plasmapheresis among other treatments.

More research is needed to improve early diagnosis and treatment. Research will also help physicians better understand the condition. PANS/PANDAS Awareness Day encourages everyone to learn more about the condition, recognize the symptoms, and support families with a loved one diagnosed with PANDAS.

5 WAYS TO SUPPORT PANS/PANDAS AWARENESS DAY

There are several way to support the cause:

Speak to your state representatives to support a proclamation of PANS/PANDAS Awareness Day. Many states have already proclaimed the day.
Make a donation to support research.
Share your experiences with PANDAS.
Visit pandasnetwork.org for more information on PANDAS, the work being done and how to help.
Use #PANSPANDASAwarenessDay to share on social media.